Saturday 11 November 2017

De-Identifying patient data

UDHC Citizen Science

This is a citizen science approach in medical science to engage school (and college) students to learn clinical problem solving.

A Doctor (clinician) takes history from patient and then try to find out clues as symptops and events in life of a person and take help of medical reports to come to a diagnosis and help to cure it. Same way our citizen scientist will work with these steps.

1) A Signed Informed Consent Form - this is a form to ask permission from patient/patient family to collect their health information/data and share it in UDHC Netrowk.

2) Taking History - A history of a patient don't need to be always a list of medical jargon, any student can talk to a patient and collect information about their story, like what happened, when happened, what treatment started etc... simply need is to create story of patient's journey with any disease in a text format and one more important thing is add if patient have any specific question/need. ( do not hesitate about adding anything that patient tells you, best way is to add all information they say.)

3) Taking Medical Records - Simply take pics of all important medical records ( or all if you don't understand what important and what not ) and De-Identify them. De-Identify means hide all information that gives, patient's identity as given here. How to De-Identify is given here).

4) Update all information in a Blog and share in UDHC network so that all can engage and try to solve patient problems/questions.


Consent forms:-
Signed informed consent from the patients have been taken using the consent forms. 

for training/implementation of this contact me at - avi33tbtt@gmail.com or +917318510434 (whatsapp)